And now....I feel.... I find myself in the dark again.
I Want to Be Able to Help Other People, But I Can’t Even Figure Out How to Help Myself
I can't even figure out how to help myself...
Hematologist’s Willful Ignorance Leaves Me Shaking My Head and Why I am Unofficially Firing Him
..the doctor..was completely dismissive of my symptoms...
I Hate Waking Up Like This
At 3:45 am this morning, I woke startled with a sense of panic. I woke with my heart pounding in my chest, ears ringing, slight shortness of breath, flushing, sweating, and the weird: I feel hot and cold at the same time with chills. I am boiling with heartburn and cramping in my abdomen. When… Continue reading I Hate Waking Up Like This
Starting the Year Off With a Bang; More Neurological Symptoms and Twelfth Cranial Nerve Palsy
Some how I made it through the holidays. I went to two family get-togethers despite worsening neurological symptoms and swellings. My angioedema is out of control. And it's being complicated over the Zantac (ranitidine) "recall". So far, I've not found another H2 blocker that works as well. I had no idea just how much the… Continue reading Starting the Year Off With a Bang; More Neurological Symptoms and Twelfth Cranial Nerve Palsy
Please Stop Wearing Fragrances to the Doctor
I am currently sitting at my doctor's office in a patient room trying to calm my nerves after this morning's fiasco with the front office staff and a patient's perfume. To make it worse their office is under construction. So in other words, Chemical City. I've already popped 50 mg of Benadryl and my cheeks… Continue reading Please Stop Wearing Fragrances to the Doctor
How a Universal Record System Destroys Finding the Best Care for the Chronically Ill
Today is a horrible day. I woke up in a lot of pain in my bladder. I have interstitial cystitis, but I am almost positive I have a bad UTI (Urinary Tract Infection). I called my PCP (Primary Care Physician) to try to get an appointment. He's out on vacation this week and the next.… Continue reading How a Universal Record System Destroys Finding the Best Care for the Chronically Ill
A Word on the Bizarre: Health Insurance and Shoddy Corporate Policies Part One
Little did I know, I was about to be sucked into my doctor office's version of the twilight zone.
My Experience With an Essential Oil MLM and How Far the Company has Gone to Sell More Essential Oils.
Essential Oil MLM Company While a little off topic of what I had originally planned for my Essential Oils and Safety Series, I want to share my experience and observation of one particular MLM essential oil company. I believe my experience provides an example of how far the company has went to sell more oils… Continue reading My Experience With an Essential Oil MLM and How Far the Company has Gone to Sell More Essential Oils.
On Undiagnosed and Getting Worse
Today is a bad day. A really bad day. Every day has been a bad day since mid last week. I've been to my PCP (primary care physician) for a steroid injection because the angioedema has been so severe. The pressure in my head is near unbearable. I can't sleep. If I try to lay… Continue reading On Undiagnosed and Getting Worse
Mold in Crawlspace
For months now, all it has done is rain continuously where I live. It started in the Fall and hasn't let up yet. It was around that same time I started battling a sinus and ear infection, which I fought until after Thanksgiving and finally resorted to going to the doctor and getting antibiotics. I… Continue reading Mold in Crawlspace
Getting a Handicap Permit
Last week I took a big step forward to gain back more independence by asking my doctor to fill out my state's Disabled Person's Parking Affidavit form. The decision, for me, was pretty difficult to make. I had been contemplating the idea for quite some time. Getting around and holding up physically has continued to… Continue reading Getting a Handicap Permit
Finding a Doctor Willing to Listen
Finding a doctor willing to listen is a difficult task...
Essential Oils & Safety Part 1
REALLY BAD ADVICE is being given out regarding the safe use of essential oils
Thought for the day
Something Smells
I've been putting off writing this post for the better part of July. I've even contemplated not writing the post at all. I do not like politics. My opinion is that politics do not belong in healthcare. This doesn't change the fact that politics do exist in the medical community especially when it concerns large… Continue reading Something Smells
Surpise! You Are Now Allergic To Your Vitamin D3
You are now allergic to your vitamin d3.
PISSED
I try my best not to get angry with the situations my illness puts me in, but when it leads to discrimination my patience runs out.
Thoughts
Compassion & Kindness make a difference.
Today Has Been a Benadryl Day
It could always be worse.
Mental Exhaustion
I've reached a place of absolute mental exhaustion.
I think it's time I give my body some rest and just be.
The Latest
I've learned that coming full circle doesn't necessarily bring answers, much less positive outcomes.
When It ALL Began
There is no specific date that I can say with certainty when my illness began, but there are exact turning points...
The Burden of Being Undiagnosed
I have seen a lot of physicians. I've seen good, bad, and everything in between. There have been some that have helped, some that have tried but failed to help, some that didn't want to help, one that had "issues" and I fired (a first and hopefully last for me), many with good intentions, some… Continue reading The Burden of Being Undiagnosed
